My Everyday Miracles » Entries tagged with "TSC"
They Do not Want to See Us at Children’s Hospital Again
(Cell phone picture from right after the cast was put on) I am pretty sure I heard a collective sigh of relief when we left the Children’s Hospital with Little Princess. As far as I could tell she was the only toddler on the wing, there were quite a few pre-teen and teens (that made me almost cry) and more than a few newborns or very tiny babies. Little Princess was in her own little area for … Read entire article »
Filed under: Little Princess, Medical, Mommy
I’m Back!!!
One week ago (technically one week and onedays ago) I knew it was time to stop the bloggy break I have been on and start blogging again. I left because I lost my community or so I thought but mostly because I lost my will to write. I could not figure out what to write about and most of what I wanted to write about well I thought no one would care. In my time … Read entire article »
Filed under: Daddy, Little Man, Little Princess, Medical, Mommy
{122/365} Racing Towards a Cure for TSC
(Thank you Kelli for the cute title…wish I had thought of it!) I hope you have a few minutes to spare to read about TSC, how our family has been affected and what you can do to help! What is TSC? Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. You will see it referred to both as tuberous sclerosis (TS) and tuberous sclerosis complex (TSC). The term TSC is used in scientific literature to distinguish tuberous sclerosis complex from Tourette’s syndrome. The disease affects some people severely, while others are so mildly affected that it often goes undiagnosed. The most common affect of TSC is brain manifestation or tumors is epilepsy or seizures. Seizures occur … Read entire article »
Filed under: Little Princess
{70/365} Keeping Busy
So two things I have been doing to keep my mind off of everything going on (oh yeah I should note that everyone in our house is healthy and well except for allergies so that is not the issue) is making Etsy orders ~ seriously I have had numerous orders for days. I cannot get over the orders it is like some one some where (maybe the God I have been questioning for days) knew I needed to keep even busier and I am loving it! So thanks whoever is promoting the Etsy shop ~ I took the button off here but if you want to see what is up check out Cutest Baby on the Block! The second thing I have been doing is helping with a walk for TSC … Read entire article »
Filed under: Etsy, Mommy, Uncategorized
{27/365} January 26, 2011
Today we had our six month appointment with Little Princess’ neurologist. We have to visit every six months no matter what, just to be sure she is advancing properly and there are no signs of seizure activity I am missing. So we went to see one of my favorite doctors. I was really hoping that Little Princess would talk for him, run for him, and pretty much just be herself. Much to my dismay she did all of that and so much more (she H-A-T-E-S strangers and does not do well with people she does not know very well)! While she disappointed me because she would not let them weigh or measure her (I am curious if she has grown at all since August), she did not disappoint me when … Read entire article »
Filed under: Little Princess, TSC
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